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Fillion Emmanuelle

Sociologist, lecturer, MSSH-EHESP


The sociological issue cutting across my work is knowing how patients and disabled persons affect the global health system (public policies, professional organizations and practices, research, etc.). With the tools of sociology and ethnography, I observe individuals' and organizations' commitment in their interactions with health professionals and public-health actors: What are the subjects of agreement, negotiations, or dispute among these different actors? How do patients and disabled persons proceed to shape and change health services? From this perspective, the relationships developed by patients and disabled persons with the law and justice are an important factor. My work is currently distributed into three research programs and the exploitation of their data:

  • "Distilbène®: quelles leçons sociologiques ? Une expérience médicale et sociale des perturbateurs endocriniens" (2010-2013), under a national research program on endocrine disrupters under the Ministry of Ecology, Sustainable Development and Energy. The fundamental goal of this project is to analyze the French history of Distilbène®, particularly from the point of view of mobilizations (scientific, medical, community-based, and legal);
  • "Les enjeux du diagnostic prénatal (DPN) dans la prévention des handicaps : l'usage des techniques entre progrès scientifiques et action publique" (2009-2013), ANR program. This study aims to explore, as one, disability and the perinatal period by approaching the uses of PND in their entanglements with research and technical evolutions, on the one hand, and prevention policies and the meanings of disability on the other hand. Within this framework, I work more specifically on the legal treatment of the related legal recourses;
  • "Se mobiliser pour les droits des personnes handicapées" (2013-2015). Research program conducted under the Situations of Disability and Social Participation Chair of the Maison des sciences sociales du handicap (CNSA/EHESP). The question of rights, and in particular the "rights of persons", has become a cause for disabled persons and their collectives to mobilize. We propose to investigate the various forms of commitment for rights by individuals and community-based collectives in France, with a focus on their international connections and their alliances with other actors.

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