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Experience of mental health and intellectual disability

Mercredi 29 octobre 2014 à 14h
Université Paris-Descartes, bâtiment Jacob, salle J233

Anders Gustavsson
Professor of Education and Disability Research, Stockholm University
My presentation draws on an on-going project concerning identity construction of persons with mild intellectual disabilities. A point of departure is the Swedish practice in upper secondary schools for pupils with such disabilities to "help them accept their disability". This practice is based in a dichotomous model of thought, where you are supposed to identify as either intellectually disabled or not. Recent disability studies, but first of all migration and ethnic studies, show that self-identities often are much more complex. The research project addresses how a model of complexity and fluidity of identity construction of persons with mild intellectual disabilities can be understood and put to practice.

Sonja Olin Lauritzen
Professor Emerita, Department of Education, Stockholm University
My research interests are predominantly in everyday (or lay) understandings of health and illness, and how these understandings are communicated and negotiated in interactions with medical professionals and medical discourse. More specifically, I am interested in how the lines are drawn between health and illness, normality and deviance, in the early phases of the life-course, when the child (or child-to-be) is being constituted as normal or not normal. In my presentation I will draw on empirical studies of screening for Down Syndrome in early pregnancy and of health surveillance of the young child.

Robert Ohlsson
Senior lecturer of education, Stockholm University
In the seminar I would like to discuss studies of everyday sense-making and representations of mental health from a sociocultural approach. In my previous research I have studied how members of self-help groups in Swedish mental health user organizations communicate and make sense of their illness experiences and how knowledge is constructed in these communities by means of different "cultural tools". This involves both resources that self-help groups produce as communities (e.g. shared experiential knowledge and co-narrated collectivized illness narratives) and resources that are appropriated from domains of medical expert knowledge (e.g. diagnostic concepts and explanatory models). Presently I am working with a research project that focus on popularization of expert knowledge, with a specific focus on the implications of representations of the brain in mass media for sense making regarding the nature of mental illness.

Samuel Neuberg et Pauline Blum
Doctorants au Centre Maurice Halbwachs (EHESS), attachés à la Chaire « Handica psychique et décision pour autrui » de la Maison des Sciences Sociales du Handicap
This talk is about some interrogations that arise from ethnographic works aimed at observing the impact of mental "disorders" on the everyday life and care of people leaving under the description of mental illness and their relatives. It looks in particular at the making and continuous reshaping of the divide between the "crazyness" itself, handled by the psychiatric institutions, and the related disabilities, taken care of by the social sector with or without involvement of the family, throughout the everyday care-giving. This talk is based on field studies conducted between 2011 and 2014 in several psychiatric or social institutions, and hopes to contribute to the ongoing research about "mental-illness-related" disabilities.

Alain Ehrenberg
Directeur de recherche au CNRS-Cermes3
Alain Ehrenberg évoquera deux textes récemment publiés dont voici les titres :
What we talk about when we talk about mental health issues. Propositions for a radical intellectual shift.
Am I Sick because of my Brain or my Ideas? Neuroscience and Self-Knowledge

Livia Velpry
Maitresse de conférence à l'Université Paris 8 et chercheure associée au Cermes3
My presentation will focus on the new regulations of mental health care practices, especially regarding the use of constraint. I will describe how this concern is addressed in the multidisciplinary research program Contrast (contrastcollectif.wordpress.com), which I currently co-manage with Benoît Eyraud. The example of my current research on practices regarding consent and constraint in specialized psychiatric care will be used as an illustration. Finally, I will discuss some issues regarding the consequences of mental disorders on the life course and how they are accounted for, using the notion of "the social experience of mental illness".